Diary Day 108: PACE Trial and Yesterday’s Post About MECFS Spectrum

Yesterday I wrote a fairly long post about how establishing research exploring the MECFS spectrum could change the context that the PACE Trial is viewed in.  Overnight I woke up and thought about it again. “There’s something much more simple and obvious,” I thought. It’s to do with the oft-quoted adage in research, “correlation does […]

Diary Day 107: Research Needed, MECFS Is A Spectrum Disorder, Energy Finite Though?

Yesterday I blogged about meeting a new friend for a cuppa.  While we were talking she talked about the in’s and out’s of having a child who is Autistic. Then we talked about the in’s and out’s of having CFSME. It’s the first time I’ve had to explain my experience of CFSME with someone who […]

Tory Majority Day 51: For Anyone Who Wants To Know What MECFS Is

Even when you have an illness and know it’s intricacies, it’s challenges, how it feels, how it affects your life, how it steals you from yourself and your loved ones, how much it has destroyed you and how it rips you from your life, reminding yourself how it can be for other people is important. […]

Tory Majority Day 41 Why Would Having MECFS Affect Your Emotional Brain?

I really like puzzles. I particularly like puzzles that are about the human mind, behavior and health. That’s one of the reasons why I studied Psychology.  Having ME has been exactly the same as it is for anyone having ME on an hour by hour basis. Filled with pain, sickness, exhaustion and the rest. However when […]

Tory Majority Day 21: Do I Have CFSME Because I Am A Woman?

Oh those early days of being ill. It might be a surprise for some people reading this but I look back on them now with such a sense of light and fondness. I didn’t understand what I had when I first was ill, so I still had a job, a social life, a boyfriend, a […]