Diary Day 114: How To Have A Life and CFSME – A Spoonie’s Progress

It’s been a couple of months since I last blogged and that’s because I’ve been grasping the nettle of life!  It’s almost my 5 year anniversary of being diagnosed with CFSME. To some that’s a newbie, to me it represents 5 of the hardest years I’ve ever been through, period. But I’m 5 years into […]

Diary Day 113: Diabetes and MECFS – The Results, GP Advice, The Barriers To Change

Yesterday I Googled “MECFS and Type 2 Diabetes.” There were various links on the 1st page of search results. The link is in that sentence. Included in the list was this blog’s category “MECFS and Type 2 Diabetes.” You can find all my posts on this subject by clicking on that link to the right of […]

Diary Day 112: CFSME Makes You Diabetic, Discuss.

A year ago I had a series of blood tests at my GP’s.  The blood tests were standard screening for, amongst other things, how my body reacts to glucose. This is known as a fasting insulin test. When I was diagnosed with ME in 2010, the gateway blood tests that are done to confirm the […]

Diary Day 106: Boundaries Abt CFSME, GET, Friendship, Learning.

This week’s been ‘one of those weeks.’  It started with a day on Monday that knocked me sideways, or should that be, laid me flat. From early in the morning as I got up to get ready to see my counsellor I could tell something was wrong, really quite different and wrong. My back and head […]

Diary Day 97: Clinical Depression And MECFS – Post 1

This is a follow up post from yesterday, which was about how I manage my sleep problems using a prescribed drug from my GP called Mirtazapine (MTZ.) MTZ is an anti-depressant and with the history of ME being mistaken for, or treated as a primary mental health condition, I wrote yesterday’s post knowing it is […]

Tory Majority Day 87: PACE Trial 2 – Why Wasn’t My Experience Of Attending An NHS CFSME Clinic Evaluated?

This is a follow up post from yesterdays about the PACE trial.  It could end up being quite technical so I’ll keep it short for those of us with brain fog or who don’t come from a health care background or aren’t that interested in research full stop! Outcome research is carried out in health care […]

Tory Majority Day 82: Renting on Housing Benefit In London, The Flat Is Secured, A Welcomed Break Beforehand.

” I hope you don’t mind me saying this, but you’d have never get better unless you moved on from your old flat, Lindy,” said CB, my friend who also has CFSME.  “It’s OK to say that, I really do know how true that is,” came my reply. She and I were sitting outside in […]

Tory Majority Day 78: Why I Did Graded Exercise Therapy For MECFS And What It Was Like Plus CFSME and Diabetes

At the bottom of yesterday’s post, a reader posted a comment about why I’d written:  “None of them have helped my symptoms, except Graded Exercise Therapy. GET confirmed to me that I can do a bit of exercise and described exactly how much that is before I decline. It was useful in that way.” GET can […]

Tory Majority Day 77: What Works – My Rule Of Thumb For Getting MECFS Symptoms Reigned In

I’m suffering from an increase in MECFS symptoms at the moment but if you follow my diary you’ll have read how it feels pretty much every time I post. There’s never a day that goes past where the unwelcome guest isn’t in my life, so what do I do that makes it possible to manage the symptoms […]

Tory Majority Day 74: I Feel Like 7 Sacks Of Sh*te, Post Exertional Malaise and MECFS

I.feel.So.Ill. I’ve got that sea-sick feeling in my head and stomach. My balance is off, as if an earthquake is happening and I can’t get my feet firmly on the rolling ground. My head is pounding and throbbing in time with the rolling ground. I started sneezing this morning. I can feel tickling in my throat, […]