Diary Day 93: Having A Nasty Winter Cold Makes Me Look Back On Journey With MECFS

It was inevitable: it’s winter, I am running central heating for the first time in 2 years and I’ve just been through a house move, which for someone without ME would be stressful, but for someone with CFSME is doubley so. Yup, I’ve got a nasty horrible cold. My nose has been blown constantly since […]

Diary Day 91: In My New Home, Housing Benefit, Patient Group Direction Flu Jab, Telling Pharmacist What MECFS Is

….and hello December!  It’s more like the end of February down here at the moment, the sun is shining in the way it does when the season is changing from winter to Spring and you feel that warmth is coming. Maybe it’s also my good mood warming me up because I’m firmly ensconced in my […]

Tory Majority Day 82: Renting on Housing Benefit In London, The Flat Is Secured, A Welcomed Break Beforehand.

” I hope you don’t mind me saying this, but you’d have never get better unless you moved on from your old flat, Lindy,” said CB, my friend who also has CFSME.  “It’s OK to say that, I really do know how true that is,” came my reply. She and I were sitting outside in […]

Tory Majority Day 76: The Realisation Of The Limitations Of Having MECFS

It’s become obvious again: that this condition, this illness, this disability steals your life, your health and your choices. I’ve been having obvious spikes in symptoms over the last month. It’s not that I was well before the last month, honestly I wasn’t, but today I realised that before pressing the big red button to […]

Tory Majority Day 74: I Feel Like 7 Sacks Of Sh*te, Post Exertional Malaise and MECFS

I.feel.So.Ill. I’ve got that sea-sick feeling in my head and stomach. My balance is off, as if an earthquake is happening and I can’t get my feet firmly on the rolling ground. My head is pounding and throbbing in time with the rolling ground. I started sneezing this morning. I can feel tickling in my throat, […]

Tory Majority Day 73: Voting in Labour Leadership, Decorating, Post Exertional Malaise, Flathunt Stalled.

I almost forgot to vote in the Labour Leadership, which is incredible as the volume of emails from Tessa, Sadiq, Jeremy, Ken – he supported Jeremy, David, Diane, erm all the others and then them all over again, and again, and again AND again was an avalanche. It certainly isn’t the case that I had […]