Tory Majority Day 76: The Realisation Of The Limitations Of Having MECFS

It’s become obvious again: that this condition, this illness, this disability steals your life, your health and your choices. I’ve been having obvious spikes in symptoms over the last month. It’s not that I was well before the last month, honestly I wasn’t, but today I realised that before pressing the big red button to […]

Tory Majority Day 57: The Stress Tornado Passing, Payback, Sleep, Light Appears

How long has life felt like this? Since June, when I started the ball rolling by asking my dodgy landlord to move. It’s been weeks at a much, far higher level of activity that I’ve experienced since the long-ago, beginning months of holding down a job with a new diagnosis of MECFS. The last weeks […]

Tory Majority Day 53: Rest, Cancer, Being A Spoonie, Pathographical Writing, Real Life Situations and MECFS

I went to and fro about what to write about yesterday, partly because I don’t write about everything in this diary. It’s public and anyone can read it and so there is judicious editing about what goes onto this screen. The judicious editing happens partly because for anyone with ME, taking on board the act of […]

Tory Majority Day 51: For Anyone Who Wants To Know What MECFS Is

Even when you have an illness and know it’s intricacies, it’s challenges, how it feels, how it affects your life, how it steals you from yourself and your loved ones, how much it has destroyed you and how it rips you from your life, reminding yourself how it can be for other people is important. […]

Tory Majority Day 33: Yet More Mould – In My Shoes This Time!

I’ve held onto my most gorgeous shoes and boots because I believe that you can buy shoes once and that’s it. Your feet are the one part of your body that stays put when you finish growing – I’ll be size 4 1/2 for life! My little ‘shoe philosophy’ means that my collection has shoes […]

Tory Majority Day 32: A Game Changer For Affordable And Safe Housing

Anyone who has been following my diary knows I’m struggling with a quadruple-whammy because of my benefits situation, my disability, the unsafe and unhealthy property I rent and the lack of available or affordable housing in London. For those not following the up’s and down’s or are suffering from brain fog and want a recap, here it […]

Tory Majority Day 29: Out Of The Blue Surprise Help From Citizens Advice

Addendum: I thought it was unlikely that the Citizens Advice Bureau would reach out to me this way and I was right. The person who contacted me as I describe in this diary entry was from a disability rights organisation, not the CAB. It was an organisation I contacted on Wednesday around about the same […]

Tory Majority Day 29: Fuctional Problems, Other’s Problems, Self Care, The Importance Of Sleep

Functional problems. That’s a word I use for the sort of problems that I deal with everyday. I got the word from the phrase ‘functioning addicts’ i.e. people who are addicts but their lives run around their addictions. It’s the everyday problems that having CFSME produces, my home, my lack of money, heat or eat, fuel […]

Tory Majority Day 27: I Don’t Know What More I Can Do, Council Home Application, PsychoSocial Model Is A Fallacy

I don’t know what more I can do. I thought about phoning the Council today to chase up my council flat application, again. It’s been forever since I submitted the medical evidence – 2 months ago now. Every day I’ve gone to the front door and picked up a collection of letters in brown and […]