Tory Majority Day 84: Why I Don’t Pick Up The Phone – MECFS and Noise Sensitivity or Hyperacusis

Yesterday my dodgy ex-landlord accused me of not picking up the phone when he called.  The day before, The Telegraph had published an article about GET and CBT, the UK NHS treatments for CFSME. I was vocal over Twitter about the bad news the publication of this article meant for the ME community. Yesterday The Telegraph […]

Tory Majority Day 54: Crash, Payback, Reason For The Gap In Writing, Thanks Tommy Walsh

I should have seen it coming – a crash, that is. Rather unsurprisingly after all the events of the last few weeks I had a crash which started last Thursday afternoon. For anyone reading who isn’t a spoonie or doesn’t know what a crash is, it’s a term that is used by people who have […]

Tory Majority Day 17: Bank Holiday Socialising With My MECFS Friend, CB.

I have a very good friend who I met because of one thing; she and I both have ME.  The universe must have had both of us in mind on the day CB and I met. She’s one of those people who if I’d been in a room and met her when I was 16, […]