Tory Majority Day 17: Bank Holiday Socialising With My MECFS Friend, CB.

I have a very good friend who I met because of one thing; she and I both have ME.  The universe must have had both of us in mind on the day CB and I met. She’s one of those people who if I’d been in a room and met her when I was 16, […]

Tory Majority Day 14: CFSME Dictionary. Payback, Noun. A Doing Too Much Word.

Payback / noun / ˈpeɪbak A symptom associated with the conditions Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Systemic Exertion Intolerance Disease  A colloquial term describing a range of physical and cognitive symptoms that occur after a patient extends themselves, physically or cognitively, or both, beyond what their body or mind, or both, can cope […]

Tory Majority Day 13: CFSME As A Medical Priority And Getting A Council Home In London

As if being ‘on the sick’ doesn’t make me a enough of a dirty benefit scrounger, I’m also trying to get council housing. My application is based on medical and economic grounds. I’m putting forward evidence to prove to my local council that the conditions I live in are negatively impacting on my health. If it […]