Diary Day 104: Talking About ME Symptoms, Gap in NHS Care, Grief, Cancer, Carer, What An ME Crash Feels Like Post 1

This weekend is an anniversary. It’s the anniversary of 2 years since I went into a steep decline in my functioning and symptoms that people with ME call a ‘crash.’   I went from being a moderate ME patient to a severe ME patient in the space of about a month.  In my case, the […]

Tory Majority Day 72: It Would Have Been Happy 80th Birthday, Mum. Thank you For All You Did To Help Me.

Today would have been  my mother’s 80th birthday. She died two years ago having battled cancer for just over 5 years. She was diagnosed with cancer and then went through the first two years of surgery, chemotherapy and radiotherapy before I realised that something was very wrong with me, something that was eventually diagnosed as […]

Tory Majority Day 53: Rest, Cancer, Being A Spoonie, Pathographical Writing, Real Life Situations and MECFS

I went to and fro about what to write about yesterday, partly because I don’t write about everything in this diary. It’s public and anyone can read it and so there is judicious editing about what goes onto this screen. The judicious editing happens partly because for anyone with ME, taking on board the act of […]

Tory Majority Day 52: Slings and Arrows….

It’s been a few days since I last posted. That’s partly because my attention has been elsewhere. Packing up and moving for a spoonie means that there’s hardly any time left to think about adding a blog post into the mix. There just isn’t enough energy left after battling with bulging boxes. I’ve said it […]