Tory Majority Day 39: Type 2 Diabetes and MECFS, Graded Exercise Therapy, On Your Bike?

In September last year a set of routine blood tests carried out by my GP told me something that I literally did not see coming: I was at risk of developing Type 2 Diabetes.  Before ME diagnosis – A OK – blood glucose normal. 2 years in to having ME – this! The blood tests were […]

Tory Majority Day 38: MECFS Brain Fog, Cooking On Benefits and Energy Friendly Vegetable Soup

It’s been an energy sapping week with the potential house move and once again, I’m in the last few days of an ESA fortnight as well. I have a grand total of £8.43 in my purse and no money left in my bank account. This unenviable combo of tiredness, distraction and very little money sent me to […]

Tory Majority Day 31: Rest. Noun. An Essential Part Of Coping With CFSME

Rest / noun / [rest] An essential component to coping with CFSME symptoms.  The opposite of rest to someone with CFSME is “activity.” Dictionary.com defines rest as:  refreshing ease or inactivity after exertion or labor: to allow an hour for rest. relief or freedom, especially from anything that wearies, troubles, or disturbs. a period or interval […]

Tory Majority Day 30: Cooking For The Week Ahead – Vegetarian Brown Rice Lentil Risotto

Having cooked in a rush last week and when I was tired, I had to rethink about how to approach my weekly cooking day differently. Well, let’s face it – it’s one thing riding high on the energy that exists when I wake up and going hell for leather with a massive advance cook for […]

Tory Majority Day 29: Fuctional Problems, Other’s Problems, Self Care, The Importance Of Sleep

Functional problems. That’s a word I use for the sort of problems that I deal with everyday. I got the word from the phrase ‘functioning addicts’ i.e. people who are addicts but their lives run around their addictions. It’s the everyday problems that having CFSME produces, my home, my lack of money, heat or eat, fuel […]

Tory Majority Day 27: I Don’t Know What More I Can Do, Council Home Application, PsychoSocial Model Is A Fallacy

I don’t know what more I can do. I thought about phoning the Council today to chase up my council flat application, again. It’s been forever since I submitted the medical evidence – 2 months ago now. Every day I’ve gone to the front door and picked up a collection of letters in brown and […]

Tory Majority Day 25: Brain Fog – How Nasty Accidents Happen With CFSME, Safety And DLA PIP

Yesterday was cooking day. I started off cooking first thing in the morning as I have to do with any energy-requiring activity but I was tired and suffering pay back symptoms after Saturday. With my disability, MECFS, that means that I was cooking whilst suffering problems with physical exhaustion and brain fog.  Brain fog is a odd, pervasive cognitive […]

Tory Majority Day 24: Cooking On Benefits and With MECFS. Getting My Food Stash Ready

At the end of this post I said: “I’m now having to consider how I feed myself this week.” I survive on ESA so my budget for food is always tight – I’ve also got that whole thing happening about choosing whether to heat or eat in winter. Sometimes, whether it’s winter or summer at this […]

Tory Majority Day 23: Normality, Choices, Hello, Payback, You Are On Your Way

CFSME is a fluctuating condition. That means that in my case, some days are better than others. Today was a ‘day that was better than others.’ MUCH better than others 🙂 I was trying to explain it to someone I saw today. I explained it as having choices return. I could choose to do more […]

Tory Majority Day 22: ME Association Report And A Conversation About CBT

In the last 24 hours I had a conversation that has changed my outlook on CBT and CFSME. Hard on the heels of that chat, this morning I woke up and found that the ME Association had published a report into patient experiences of GET, CBT and Pacing therapies. I read it. In that report, […]