Diary Day 96: On Mirtazapine That Helps My CFSME, Plus SSRI Antidepressants and Amitriptyline

So, yesterday I blogged about  how I’m taking control of the things I know affect my ME symptoms in an attempt to gain more quality of life. I signed off saying that I would be more silent here – on the blog front-  in order to finish other writing I’m doing. Famous last words! It’s me, […]

Diary Day 91: In My New Home, Housing Benefit, Patient Group Direction Flu Jab, Telling Pharmacist What MECFS Is

….and hello December!  It’s more like the end of February down here at the moment, the sun is shining in the way it does when the season is changing from winter to Spring and you feel that warmth is coming. Maybe it’s also my good mood warming me up because I’m firmly ensconced in my […]

Diary Day 80: Finding Somewhere To Live on Housing Benefit – Fate Smiles Because I Had To Be Open About Having CFSME

I am typing this post from the spare bed in the laundry room at my Silver Surfer Dad’s house. I moved in last weekend and this week has been such a total sea change from what it was like before.  Life’s changed completely and beautifully opened up again. 🙂 And I’m not only feeling relaxed […]

Tory Majority Day 66: An Open Letter To Members Of Parliament About Austerity, Housing Benefit and Affordable Housing In London

11th August 2015 Dear MP, Boris Johnson, parliamentary candidate, mayoral candidate or Labour leadership candidate, Today I’m starting another round of phoning London estate agents in my local area, seeking out whether anyone will be prepared to accept me as a tenant. A simple process, you may well think. It is a simple process when […]

Tory Majority Day 50: Osbourne’s Emergency Budget – Reflect and Regroup The Protest Continues

George Osbourne’s emergency budget was long feared by myself and many, many people who are reliant on welfare benefits to survive a long term illness or disability.  I cannot overstate the impact mentally and emotionally on me during the wait to find out if my life and health will get significantly worse under the new Tory […]

Tory Majority Day 48: Packing and Pacing, Spoon Theory, Dodgy Knee and The Day Before The Welfare Cuts

Before I write this, I want to give a big thank you to everyone who reads my diary and has sent me kind, supportive and thoughtful words over the last week.  One of the things that I’ve found about the ME community is that everyone knows how it is better than ANY medical professional or […]

Tory Majority Day 42: Permitted Work Claiming ESA or DWP Tripwire?

It was father’s day this Sunday and I spent some time with silver surfer Dad and my sister, HS.  The subject of Permitted Work came up. Permitted Work is a scheme run by the Department for Work and Pensions for people who are claiming Employment and Support Allowance, the UK’s sickness benefit payable to people who […]

Tory Majority Day 29: Out Of The Blue Surprise Help From Citizens Advice

Addendum: I thought it was unlikely that the Citizens Advice Bureau would reach out to me this way and I was right. The person who contacted me as I describe in this diary entry was from a disability rights organisation, not the CAB. It was an organisation I contacted on Wednesday around about the same […]

Tory Majority Day 25: Brain Fog – How Nasty Accidents Happen With CFSME, Safety And DLA PIP

Yesterday was cooking day. I started off cooking first thing in the morning as I have to do with any energy-requiring activity but I was tired and suffering pay back symptoms after Saturday. With my disability, MECFS, that means that I was cooking whilst suffering problems with physical exhaustion and brain fog.  Brain fog is a odd, pervasive cognitive […]

Tory Majority Day 17: Bank Holiday Socialising With My MECFS Friend, CB.

I have a very good friend who I met because of one thing; she and I both have ME.  The universe must have had both of us in mind on the day CB and I met. She’s one of those people who if I’d been in a room and met her when I was 16, […]