Tory Majority Day 76: The Realisation Of The Limitations Of Having MECFS

It’s become obvious again: that this condition, this illness, this disability steals your life, your health and your choices. I’ve been having obvious spikes in symptoms over the last month. It’s not that I was well before the last month, honestly I wasn’t, but today I realised that before pressing the big red button to […]

Tory Majority Day 54: Crash, Payback, Reason For The Gap In Writing, Thanks Tommy Walsh

I should have seen it coming – a crash, that is. Rather unsurprisingly after all the events of the last few weeks I had a crash which started last Thursday afternoon. For anyone reading who isn’t a spoonie or doesn’t know what a crash is, it’s a term that is used by people who have […]

Tory Majority Day 53: Rest, Cancer, Being A Spoonie, Pathographical Writing, Real Life Situations and MECFS

I went to and fro about what to write about yesterday, partly because I don’t write about everything in this diary. It’s public and anyone can read it and so there is judicious editing about what goes onto this screen. The judicious editing happens¬†partly because for anyone with ME, taking on board the act of […]

Tory Majority Day 51: For Anyone Who Wants To Know What MECFS Is

Even when you have an illness and know it’s intricacies, it’s challenges, how it feels, how it affects your life, how it steals you from yourself and your loved ones, how much it has destroyed you and how it rips you from your life, reminding yourself how it can be for other people is important. […]

Tory Majority Day 48: Packing and Pacing, Spoon Theory, Dodgy Knee and The Day Before The Welfare Cuts

Before I write this, I want to give a big thank you to everyone who reads my diary and has sent me kind, supportive and thoughtful words over the last week.¬† One of the things that I’ve found about the ME community is that everyone knows how it is better than ANY medical professional or […]