Tory Majority Day 51: For Anyone Who Wants To Know What MECFS Is

Even when you have an illness and know it’s intricacies, it’s challenges, how it feels, how it affects your life, how it steals you from yourself and your loved ones, how much it has destroyed you and how it rips you from your life, reminding yourself how it can be for other people is important. […]

Tory Majority Day 40: My Disability Advocate, Unsafe Housing, Dealing With Stress and ME CFS and Social Services Referral

Julie, my new disability advocate  has created a u-turn in my thinking so much that when I didn’t hear from her since our assessment last week I started to wonder if she’d been a mirage or even she didn’t exist and was a new ME symptom!  But no. Her office computer had broken. Now it’s fixed […]

Tory Majority Day 36: What Julie The Disability Rights Worker Asked In My Housing Assessment

It appears that some of you who read my diary are particularly interested in the situation with my housing.  Since my at-home assessment with Julie, my new disability rights worker, on Tuesday this week I haven’t written more about it. This was intentional because I was processing a lot of what was said and I […]

Tory Majority Day 33: Yet More Mould – In My Shoes This Time!

I’ve held onto my most gorgeous shoes and boots because I believe that you can buy shoes once and that’s it. Your feet are the one part of your body that stays put when you finish growing – I’ll be size 4 1/2 for life! My little ‘shoe philosophy’ means that my collection has shoes […]