Diary Day 117: UK Government Work Health and Disability Green Paper Improving Lives

https://www.gov.uk/government/consultations/work-health-and-disability-improving-lives/work-health-and-disability-green-paper-improving-lives Over the last week I was aghast at the news yet again. The UK Government’s volte face regarding their approach to sick and disabled people in the benefit system is another assault in the arsenal of attacks meted on those too unwell or disabled to work. Remember when Theresa May took over as PM […]

Diary Day 94: Refocussing From MECFS Via Spoon Theory, Improving Quality Of Life.

Happy New Year readers! A bit late, I know, but recently I’ve been attempting something. I’ve been using Spoon Theory to try to give myself a bit more of something kind of special – a better quality of life (QOL). Before I carry on, aside for some life and health related basics measured for all, my QOL is […]

Tory Majority Day 31: Rest. Noun. An Essential Part Of Coping With CFSME

Rest / noun / [rest] An essential component to coping with CFSME symptoms.  The opposite of rest to someone with CFSME is “activity.” Dictionary.com defines rest as:  refreshing ease or inactivity after exertion or labor: to allow an hour for rest. relief or freedom, especially from anything that wearies, troubles, or disturbs. a period or interval […]

Tory Majority Day 25: Brain Fog – How Nasty Accidents Happen With CFSME, Safety And DLA PIP

Yesterday was cooking day. I started off cooking first thing in the morning as I have to do with any energy-requiring activity but I was tired and suffering pay back symptoms after Saturday. With my disability, MECFS, that means that I was cooking whilst suffering problems with physical exhaustion and brain fog.  Brain fog is a odd, pervasive cognitive […]

Tory Majority Day 19: Why It’s Not Possible For Me To Work With MECFS

I tried it, working with my disability MECFS that is.  In the 6 months leading up to my diagnosis I had a part-time job in the NHS. I’d worked for some years within the public sector as an academic as well as a clinician and a manager. I was doing a lot of teaching. Before […]