Tory Majority Day 49: The Tipping Point For My MECFS, Antibiotic Prescriptions Perhaps?

[I’d like to precede this post by saying that I’m not a medical doctor. Even if I was, what I am about to say is termed as ‘opinion’. In a nutshell that means I’m allowed to write about whatever I want to write about, because it’s my opinion only. Please don’t rely on what I’m […]

Tory Majority Day 46: Heatwave & Inner Temperature Problems In People With MECFS

Yesterday was the hottest July day on record. Many people with ME or CFS will have suffered acutely. This is because our inner temperature controls are broken, like a thermostat that has gone on the blink. I have to have hot weather or a hot environment to feel well and since it’s become summer my […]

Tory Majority Day 39: Type 2 Diabetes and MECFS, Graded Exercise Therapy, On Your Bike?

In September last year a set of routine blood tests carried out by my GP told me something that I literally did not see coming: I was at risk of developing Type 2 Diabetes.  Before ME diagnosis – A OK – blood glucose normal. 2 years in to having ME – this! The blood tests were […]

Tory Majority Day 27: I Don’t Know What More I Can Do, Council Home Application, PsychoSocial Model Is A Fallacy

I don’t know what more I can do. I thought about phoning the Council today to chase up my council flat application, again. It’s been forever since I submitted the medical evidence – 2 months ago now. Every day I’ve gone to the front door and picked up a collection of letters in brown and […]

Tory Majority Day 22: ME Association Report And A Conversation About CBT

In the last 24 hours I had a conversation that has changed my outlook on CBT and CFSME. Hard on the heels of that chat, this morning I woke up and found that the ME Association had published a report into patient experiences of GET, CBT and Pacing therapies. I read it. In that report, […]

Tory Majority Day 19: Why It’s Not Possible For Me To Work With MECFS

I tried it, working with my disability MECFS that is.  In the 6 months leading up to my diagnosis I had a part-time job in the NHS. I’d worked for some years within the public sector as an academic as well as a clinician and a manager. I was doing a lot of teaching. Before […]

Tory Majority Day 18: Reading The Observer Article, Ian Duncan Smith, 12 Bn Welfare Cuts

It was bank holiday Sunday yesterday and I got out of my home to go out for the short walk I’m meant to do daily to maintain my fitness – this is a form of Graded Exercise Therapy and yes, it’s something I’ve been advised to do by the NHS CFSME clinic.  The sense of exhaustion that I […]

Tory Majority Day 17: Bank Holiday Socialising With My MECFS Friend, CB.

I have a very good friend who I met because of one thing; she and I both have ME.  The universe must have had both of us in mind on the day CB and I met. She’s one of those people who if I’d been in a room and met her when I was 16, […]

Tory Majority Day 11: Disability Paperwork, Studying With CFSME, Career Interrupted, CFSME Is Not Depression

Today I need to renew my half price Oyster card.  As mundane as it sounds, no doubt reads and is also to write, getting things ready for today meant I had to bend double behind my sofa / bed and pull out boxes where all my paperwork is hidden. I’ve learned the hard way that […]