Diary Day 118: Standard Letter For MPs Green Paper Work Health and Disability Improving Lives

Here is the link to the documentation: Link to Government Green Papers  At the bottom of this blog post is a standard letter for you to copy and paste and send to either your MP or disability rights organisations.  Here is a link to a Consultation form which asks questions in order for them to […]

Diary Day 115: Not Diabetic, Charted My Blood Glucose, New GP Changed Diagnosis

Those of you who read this blog know that over the last year I’ve been dealing with a Pre-diabetes diagnosis and then in the last few months, a  diagnosis of early Type 2 Diabetes. Those who don’t regularly read this blog; in a nutshell, alongside everything else that having CFSME brings,  a year ago I […]

Diary Day 114: How To Have A Life and CFSME – A Spoonie’s Progress

It’s been a couple of months since I last blogged and that’s because I’ve been grasping the nettle of life!  It’s almost my 5 year anniversary of being diagnosed with CFSME. To some that’s a newbie, to me it represents 5 of the hardest years I’ve ever been through, period. But I’m 5 years into […]

Diary Day 113: Diabetes and MECFS – The Results, GP Advice, The Barriers To Change

Yesterday I Googled “MECFS and Type 2 Diabetes.” There were various links on the 1st page of search results. The link is in that sentence. Included in the list was this blog’s category “MECFS and Type 2 Diabetes.” You can find all my posts on this subject by clicking on that link to the right of […]

Diary Day 112: CFSME Makes You Diabetic, Discuss.

A year ago I had a series of blood tests at my GP’s.  The blood tests were standard screening for, amongst other things, how my body reacts to glucose. This is known as a fasting insulin test. When I was diagnosed with ME in 2010, the gateway blood tests that are done to confirm the […]

Diary Day 107: Research Needed, MECFS Is A Spectrum Disorder, Energy Finite Though?

Yesterday I blogged about meeting a new friend for a cuppa.  While we were talking she talked about the in’s and out’s of having a child who is Autistic. Then we talked about the in’s and out’s of having CFSME. It’s the first time I’ve had to explain my experience of CFSME with someone who […]

Diary Day 106: Boundaries Abt CFSME, GET, Friendship, Learning.

This week’s been ‘one of those weeks.’  It started with a day on Monday that knocked me sideways, or should that be, laid me flat. From early in the morning as I got up to get ready to see my counsellor I could tell something was wrong, really quite different and wrong. My back and head […]

Diary Day 104: Talking About ME Symptoms, Gap in NHS Care, Grief, Cancer, Carer, What An ME Crash Feels Like Post 1

This weekend is an anniversary. It’s the anniversary of 2 years since I went into a steep decline in my functioning and symptoms that people with ME call a ‘crash.’   I went from being a moderate ME patient to a severe ME patient in the space of about a month.  In my case, the […]

Diary Day 103: Keep Writing, Do I Know Someone With Undiagnosed ME, Language Is Our Barrier, Canary In The Coalmine.

It’s been a while, again, since I’ve written. It seems these days that every day that goes past there’s some new news that affects me, you, our community. Originally this week I wanted to sit down and write about how difficult I find it explaining to anyone what ME is actually like. I mean, words, […]