Tory Majority Day 53: Rest, Cancer, Being A Spoonie, Pathographical Writing, Real Life Situations and MECFS

I went to and fro about what to write about yesterday, partly because I don’t write about everything in this diary. It’s public and anyone can read it and so there is judicious editing about what goes onto this screen. The judicious editing happens partly because for anyone with ME, taking on board the act of […]

Tory Majority Day 52: Slings and Arrows….

It’s been a few days since I last posted. That’s partly because my attention has been elsewhere. Packing up and moving for a spoonie means that there’s hardly any time left to think about adding a blog post into the mix. There just isn’t enough energy left after battling with bulging boxes. I’ve said it […]

Tory Majority Day 51: For Anyone Who Wants To Know What MECFS Is

Even when you have an illness and know it’s intricacies, it’s challenges, how it feels, how it affects your life, how it steals you from yourself and your loved ones, how much it has destroyed you and how it rips you from your life, reminding yourself how it can be for other people is important. […]

Tory Majority Day 42: Permitted Work Claiming ESA or DWP Tripwire?

It was father’s day this Sunday and I spent some time with silver surfer Dad and my sister, HS.  The subject of Permitted Work came up. Permitted Work is a scheme run by the Department for Work and Pensions for people who are claiming Employment and Support Allowance, the UK’s sickness benefit payable to people who […]

Tory Majority Day 41 Why Would Having MECFS Affect Your Emotional Brain?

I really like puzzles. I particularly like puzzles that are about the human mind, behavior and health. That’s one of the reasons why I studied Psychology.  Having ME has been exactly the same as it is for anyone having ME on an hour by hour basis. Filled with pain, sickness, exhaustion and the rest. However when […]

Tory Majority Day 39: Type 2 Diabetes and MECFS, Graded Exercise Therapy, On Your Bike?

In September last year a set of routine blood tests carried out by my GP told me something that I literally did not see coming: I was at risk of developing Type 2 Diabetes.  Before ME diagnosis – A OK – blood glucose normal. 2 years in to having ME – this! The blood tests were […]

Tory Majority Day 32: A Game Changer For Affordable And Safe Housing

Anyone who has been following my diary knows I’m struggling with a quadruple-whammy because of my benefits situation, my disability, the unsafe and unhealthy property I rent and the lack of available or affordable housing in London. For those not following the up’s and down’s or are suffering from brain fog and want a recap, here it […]

Tory Majority Day 31: Rest. Noun. An Essential Part Of Coping With CFSME

Rest / noun / [rest] An essential component to coping with CFSME symptoms.  The opposite of rest to someone with CFSME is “activity.” Dictionary.com defines rest as:  refreshing ease or inactivity after exertion or labor: to allow an hour for rest. relief or freedom, especially from anything that wearies, troubles, or disturbs. a period or interval […]

Tory Majority Day 30: Cooking For The Week Ahead – Vegetarian Brown Rice Lentil Risotto

Having cooked in a rush last week and when I was tired, I had to rethink about how to approach my weekly cooking day differently. Well, let’s face it – it’s one thing riding high on the energy that exists when I wake up and going hell for leather with a massive advance cook for […]

Tory Majority Day 29: Out Of The Blue Surprise Help From Citizens Advice

Addendum: I thought it was unlikely that the Citizens Advice Bureau would reach out to me this way and I was right. The person who contacted me as I describe in this diary entry was from a disability rights organisation, not the CAB. It was an organisation I contacted on Wednesday around about the same […]