Diary Day 118: Standard Letter For MPs Green Paper Work Health and Disability Improving Lives

Here is the link to the documentation: Link to Government Green Papers  At the bottom of this blog post is a standard letter for you to copy and paste and send to either your MP or disability rights organisations.  Here is a link to a Consultation form which asks questions in order for them to […]

Diary Day 103: An Open letter To Stephen Crabb – I’m Disabled According To ESA But Not Entitled According To DLA and PIP

An open letter to Stephen Crabb… With the shock resignation of IDS this weekend and all the spin that’s happened I think it’s important to set out my experience of Employment and Support Allowance, applying for the old benefit for Disabled People called DLA and my decision NOT to apply for the new benefit for […]

Diary Day 102: The Care Plan For CFSME Patients, What, No Prognosis?

It’s never happened. What? I hear you ask. Oh, being told what I can expect from this illness, my illness, CFSME. What do you mean? I’ve never been told by anyone I’ve seen in the medical profession, including GPs, Clinical Psychologists, Occupational Therapists, Nurses or Physiotherapists – i.e. all the people I’ve seen for CFSME […]

Tory Majority Day 70: Is ************ Estate Agents Prejudiced Against Disabled Tenants on Housing Benefit?

I’m spitting fire. Early on in my search I blogged about a particular well known Estate Agents , who I shall call ‘Acme Estate Agents’, who I categorised as a ‘bad agent’ because after I registered with them, they agreed to contact the ‘flexible’ landlord about a flat I was interested in, they didn’t call me […]

Tory Majority Day 50: Osbourne’s Emergency Budget – Reflect and Regroup The Protest Continues

George Osbourne’s emergency budget was long feared by myself and many, many people who are reliant on welfare benefits to survive a long term illness or disability.  I cannot overstate the impact mentally and emotionally on me during the wait to find out if my life and health will get significantly worse under the new Tory […]

Tory Majority Day 36: What Julie The Disability Rights Worker Asked In My Housing Assessment

It appears that some of you who read my diary are particularly interested in the situation with my housing.  Since my at-home assessment with Julie, my new disability rights worker, on Tuesday this week I haven’t written more about it. This was intentional because I was processing a lot of what was said and I […]

Tory Majority Day 34: The Cuts, The Cuts, The 12bn Welfare Cuts…Civil Servants, Make That Call.

The look of buoyant glee on George Osbourne’s face these days resembles a teenager finding out what happens when he puts his hands down his pants.  The country has become Osbourne’s, again and again,  riven by the clear Tory message that the economy must run in surplus to be healthy and competitive. Even a law will […]

Tory Majority Day 28: Council Home Decision Against Me Are There Other Housing Options Now?

After I rested for a while and wrote yesterday’s diary entry, I did try ringing the council again to chase them up about my application for housing on medical grounds.   A woman answered the phone got my name wrong, then my age wrong, then with no warning read this out to me from her computer […]

Tory Majority Day 20: The Queen’s Speech – Where’s The 12bn Bullet? On It’s Way.

Today was never going to be a good day. For a start the majority Conservative government was in Parliament delivering the Queen’s Speech and then I was going to have to actually watch it to find out what they have planned for the 12bn welfare cuts. Today was not pleasant but as rocky times are […]

Tory Majority Day 17: Bank Holiday Socialising With My MECFS Friend, CB.

I have a very good friend who I met because of one thing; she and I both have ME.  The universe must have had both of us in mind on the day CB and I met. She’s one of those people who if I’d been in a room and met her when I was 16, […]