Diary Day 119: Universal Credit Further Cuts and Homelessness To Come

How do we solve the problem with Universal Credit? A sing along version to the Sound of Music soundtrack would be funny if it weren’t that serious. ESA Support Group  I am in the ESA Support Group, one of the two groups under the old Incapacity Benefit that has identified me as incapable of work […]

Diary Day 103: An Open letter To Stephen Crabb – I’m Disabled According To ESA But Not Entitled According To DLA and PIP

An open letter to Stephen Crabb… With the shock resignation of IDS this weekend and all the spin that’s happened I think it’s important to set out my experience of Employment and Support Allowance, applying for the old benefit for Disabled People called DLA and my decision NOT to apply for the new benefit for […]

Tory Majority Day 79: CFSME and Applying For DLA and PIP – Seeking Advice

2 years ago I applied for Disability Living Allowance. I had help – my then disability rights and welfare support worker, the “First Julie”, was exemplary in taking me through the forms, guiding me to what evidence to collate, how to fill it out and what do to to appeal. She lost her job before […]

Tory Majority Day 50: Osbourne’s Emergency Budget – Reflect and Regroup The Protest Continues

George Osbourne’s emergency budget was long feared by myself and many, many people who are reliant on welfare benefits to survive a long term illness or disability.  I cannot overstate the impact mentally and emotionally on me during the wait to find out if my life and health will get significantly worse under the new Tory […]

Tory Majority Day 36: What Julie The Disability Rights Worker Asked In My Housing Assessment

It appears that some of you who read my diary are particularly interested in the situation with my housing.  Since my at-home assessment with Julie, my new disability rights worker, on Tuesday this week I haven’t written more about it. This was intentional because I was processing a lot of what was said and I […]

Tory Majority Day 34: The Cuts, The Cuts, The 12bn Welfare Cuts…Civil Servants, Make That Call.

The look of buoyant glee on George Osbourne’s face these days resembles a teenager finding out what happens when he puts his hands down his pants.  The country has become Osbourne’s, again and again,  riven by the clear Tory message that the economy must run in surplus to be healthy and competitive. Even a law will […]

Tory Majority Day 28: Council Home Decision Against Me Are There Other Housing Options Now?

After I rested for a while and wrote yesterday’s diary entry, I did try ringing the council again to chase them up about my application for housing on medical grounds.   A woman answered the phone got my name wrong, then my age wrong, then with no warning read this out to me from her computer […]

Tory Majority Day 25: Brain Fog – How Nasty Accidents Happen With CFSME, Safety And DLA PIP

Yesterday was cooking day. I started off cooking first thing in the morning as I have to do with any energy-requiring activity but I was tired and suffering pay back symptoms after Saturday. With my disability, MECFS, that means that I was cooking whilst suffering problems with physical exhaustion and brain fog.  Brain fog is a odd, pervasive cognitive […]

Tory Majority Day 11: Disability Paperwork, Studying With CFSME, Career Interrupted, CFSME Is Not Depression

Today I need to renew my half price Oyster card.  As mundane as it sounds, no doubt reads and is also to write, getting things ready for today meant I had to bend double behind my sofa / bed and pull out boxes where all my paperwork is hidden. I’ve learned the hard way that […]

Tory Majority Day 9: Counselling, Pathways To Healing MECFS, Paying for Treatment, ESA

About a year ago I got to the point where I decided that I needed somewhere to go to work through all the changes that having MECFS has brought to my life.  Hmmm. Beginning to write this, I don’t know how best to explain this without giving the impression that MECFS might be a Psychiatric problem. God, […]