Diary Day 118: Standard Letter For MPs Green Paper Work Health and Disability Improving Lives

Here is the link to the documentation: Link to Government Green Papers  At the bottom of this blog post is a standard letter for you to copy and paste and send to either your MP or disability rights organisations.  Here is a link to a Consultation form which asks questions in order for them to […]

Diary Day 103: An Open letter To Stephen Crabb – I’m Disabled According To ESA But Not Entitled According To DLA and PIP

An open letter to Stephen Crabb… With the shock resignation of IDS this weekend and all the spin that’s happened I think it’s important to set out my experience of Employment and Support Allowance, applying for the old benefit for Disabled People called DLA and my decision NOT to apply for the new benefit for […]

Diary Day 99: An Aside About The Housing Benefit Missing Xmas Payment Cock Up and Universal Credit

On New Years Eve, I opened up my bank account and read the balance. My rent was due on the 3rd January 2016 and, as this was the last day of the month, my new Housing Benefit payment of £909.00 should have been in my account since my recent house move. Housing Benefit is paid […]

Tory Majority Day 79: CFSME and Applying For DLA and PIP – Seeking Advice

2 years ago I applied for Disability Living Allowance. I had help – my then disability rights and welfare support worker, the “First Julie”, was exemplary in taking me through the forms, guiding me to what evidence to collate, how to fill it out and what do to to appeal. She lost her job before […]

Tory Majority Day 50: Osbourne’s Emergency Budget – Reflect and Regroup The Protest Continues

George Osbourne’s emergency budget was long feared by myself and many, many people who are reliant on welfare benefits to survive a long term illness or disability.  I cannot overstate the impact mentally and emotionally on me during the wait to find out if my life and health will get significantly worse under the new Tory […]

Tory Majority Day 47: Leaked Document About Tory Cuts – Housing Benefit – How More Stressful Can Life Get?

I’m feeling very stressed at the moment and this diary is going by the wayside. Kindly, I think this is what people call having not enough spoons for writing. S.T.R.E.S.S.E.D  O.U.T  That’s true, it is the case I don’t have a lot of spoons in my mental space in my scrambled, stressed out head and […]

Tory Majority Day 42: Permitted Work Claiming ESA or DWP Tripwire?

It was father’s day this Sunday and I spent some time with silver surfer Dad and my sister, HS.  The subject of Permitted Work came up. Permitted Work is a scheme run by the Department for Work and Pensions for people who are claiming Employment and Support Allowance, the UK’s sickness benefit payable to people who […]

Tory Majority Day 36: What Julie The Disability Rights Worker Asked In My Housing Assessment

It appears that some of you who read my diary are particularly interested in the situation with my housing.  Since my at-home assessment with Julie, my new disability rights worker, on Tuesday this week I haven’t written more about it. This was intentional because I was processing a lot of what was said and I […]

Tory Majority Day 34: The Cuts, The Cuts, The 12bn Welfare Cuts…Civil Servants, Make That Call.

The look of buoyant glee on George Osbourne’s face these days resembles a teenager finding out what happens when he puts his hands down his pants.  The country has become Osbourne’s, again and again,  riven by the clear Tory message that the economy must run in surplus to be healthy and competitive. Even a law will […]

Tory Majority Day 19: Why It’s Not Possible For Me To Work With MECFS

I tried it, working with my disability MECFS that is.  In the 6 months leading up to my diagnosis I had a part-time job in the NHS. I’d worked for some years within the public sector as an academic as well as a clinician and a manager. I was doing a lot of teaching. Before […]