Diary Day 118: Standard Letter For MPs Green Paper Work Health and Disability Improving Lives

Here is the link to the documentation: Link to Government Green Papers  At the bottom of this blog post is a standard letter for you to copy and paste and send to either your MP or disability rights organisations.  Here is a link to a Consultation form which asks questions in order for them to […]

Diary Day 105: An Open Letter To London Mayoral Candidates About The Housing Crisis

Dear Mayoral Candidate, This letter is to set out what I see are the failings in policy that I am looking to you to address, in order for me to decide on who I vote for in the London Mayoral Elections. For many years I’ve been on the receiving end of the housing crisis in […]

Diary Day 103: Keep Writing, Do I Know Someone With Undiagnosed ME, Language Is Our Barrier, Canary In The Coalmine.

It’s been a while, again, since I’ve written. It seems these days that every day that goes past there’s some new news that affects me, you, our community. Originally this week I wanted to sit down and write about how difficult I find it explaining to anyone what ME is actually like. I mean, words, […]

Diary Day 103: An Open letter To Stephen Crabb – I’m Disabled According To ESA But Not Entitled According To DLA and PIP

An open letter to Stephen Crabb… With the shock resignation of IDS this weekend and all the spin that’s happened I think it’s important to set out my experience of Employment and Support Allowance, applying for the old benefit for Disabled People called DLA and my decision NOT to apply for the new benefit for […]

Diary Day 99: An Aside About The Housing Benefit Missing Xmas Payment Cock Up and Universal Credit

On New Years Eve, I opened up my bank account and read the balance. My rent was due on the 3rd January 2016 and, as this was the last day of the month, my new Housing Benefit payment of £909.00 should have been in my account since my recent house move. Housing Benefit is paid […]

Tory Majority Day 82: Renting on Housing Benefit In London, The Flat Is Secured, A Welcomed Break Beforehand.

” I hope you don’t mind me saying this, but you’d have never get better unless you moved on from your old flat, Lindy,” said CB, my friend who also has CFSME.  “It’s OK to say that, I really do know how true that is,” came my reply. She and I were sitting outside in […]

Tory Majority Day 81: Finances, Specifically To Do With Low Income, Housing Benefit and Private Rented Housing

There are so many strands of thoughts that have been running around my mind for the last week or so and almost as many potential blog posts. This one will be about finances. It won’t be the last, partly because it’s such a BIG subject that it won’t all get down in one post. Anyone […]

Diary Day 80: Finding Somewhere To Live on Housing Benefit – Fate Smiles Because I Had To Be Open About Having CFSME

I am typing this post from the spare bed in the laundry room at my Silver Surfer Dad’s house. I moved in last weekend and this week has been such a total sea change from what it was like before.  Life’s changed completely and beautifully opened up again. 🙂 And I’m not only feeling relaxed […]

Tory Majority Day 79: CFSME and Applying For DLA and PIP – Seeking Advice

2 years ago I applied for Disability Living Allowance. I had help – my then disability rights and welfare support worker, the “First Julie”, was exemplary in taking me through the forms, guiding me to what evidence to collate, how to fill it out and what do to to appeal. She lost her job before […]

Tory Majority Day 75: What The Council Said About Getting Private Landlord To Evict Me So They Could Help Me With Housing

In the array of things that I’ve heard from the (now) 25 or so lettings agencies about why landlords won’t take someone on Housing Benefit in my area of London, the one that stuck in my mind above all others was this: “The Council will tell tenants to remain in properties if they want their […]