Tory Majority Day 84: Why I Don’t Pick Up The Phone – MECFS and Noise Sensitivity or Hyperacusis

Yesterday my dodgy ex-landlord accused me of not picking up the phone when he called.  The day before, The Telegraph had published an article about GET and CBT, the UK NHS treatments for CFSME. I was vocal over Twitter about the bad news the publication of this article meant for the ME community. Yesterday The Telegraph […]

Tory Majority Day 39: Type 2 Diabetes and MECFS, Graded Exercise Therapy, On Your Bike?

In September last year a set of routine blood tests carried out by my GP told me something that I literally did not see coming: I was at risk of developing Type 2 Diabetes.  Before ME diagnosis – A OK – blood glucose normal. 2 years in to having ME – this! The blood tests were […]

Tory Majority Day 38: MECFS Brain Fog, Cooking On Benefits and Energy Friendly Vegetable Soup

It’s been an energy sapping week with the potential house move and once again, I’m in the last few days of an ESA fortnight as well. I have a grand total of £8.43 in my purse and no money left in my bank account. This unenviable combo of tiredness, distraction and very little money sent me to […]

Tory Majority Day 30: Cooking For The Week Ahead – Vegetarian Brown Rice Lentil Risotto

Having cooked in a rush last week and when I was tired, I had to rethink about how to approach my weekly cooking day differently. Well, let’s face it – it’s one thing riding high on the energy that exists when I wake up and going hell for leather with a massive advance cook for […]

Tory Majority Day 29: Fuctional Problems, Other’s Problems, Self Care, The Importance Of Sleep

Functional problems. That’s a word I use for the sort of problems that I deal with everyday. I got the word from the phrase ‘functioning addicts’ i.e. people who are addicts but their lives run around their addictions. It’s the everyday problems that having CFSME produces, my home, my lack of money, heat or eat, fuel […]

Tory Majority Day 25: Brain Fog – How Nasty Accidents Happen With CFSME, Safety And DLA PIP

Yesterday was cooking day. I started off cooking first thing in the morning as I have to do with any energy-requiring activity but I was tired and suffering pay back symptoms after Saturday. With my disability, MECFS, that means that I was cooking whilst suffering problems with physical exhaustion and brain fog.  Brain fog is a odd, pervasive cognitive […]

Tory Majority Day 24: Cooking On Benefits and With MECFS. Getting My Food Stash Ready

At the end of this post I said: “I’m now having to consider how I feed myself this week.” I survive on ESA so my budget for food is always tight – I’ve also got that whole thing happening about choosing whether to heat or eat in winter. Sometimes, whether it’s winter or summer at this […]