Diary Day 118: Standard Letter For MPs Green Paper Work Health and Disability Improving Lives

Here is the link to the documentation: Link to Government Green Papers  At the bottom of this blog post is a standard letter for you to copy and paste and send to either your MP or disability rights organisations.  Here is a link to a Consultation form which asks questions in order for them to […]

Diary Day 105: An Open Letter To London Mayoral Candidates About The Housing Crisis

Dear Mayoral Candidate, This letter is to set out what I see are the failings in policy that I am looking to you to address, in order for me to decide on who I vote for in the London Mayoral Elections. For many years I’ve been on the receiving end of the housing crisis in […]

Diary Day 103: Keep Writing, Do I Know Someone With Undiagnosed ME, Language Is Our Barrier, Canary In The Coalmine.

It’s been a while, again, since I’ve written. It seems these days that every day that goes past there’s some new news that affects me, you, our community. Originally this week I wanted to sit down and write about how difficult I find it explaining to anyone what ME is actually like. I mean, words, […]

Diary Day 103: An Open letter To Stephen Crabb – I’m Disabled According To ESA But Not Entitled According To DLA and PIP

An open letter to Stephen Crabb… With the shock resignation of IDS this weekend and all the spin that’s happened I think it’s important to set out my experience of Employment and Support Allowance, applying for the old benefit for Disabled People called DLA and my decision NOT to apply for the new benefit for […]

Tory Majority Day 82: Renting on Housing Benefit In London, The Flat Is Secured, A Welcomed Break Beforehand.

” I hope you don’t mind me saying this, but you’d have never get better unless you moved on from your old flat, Lindy,” said CB, my friend who also has CFSME.  “It’s OK to say that, I really do know how true that is,” came my reply. She and I were sitting outside in […]

Diary Day 80: Finding Somewhere To Live on Housing Benefit – Fate Smiles Because I Had To Be Open About Having CFSME

I am typing this post from the spare bed in the laundry room at my Silver Surfer Dad’s house. I moved in last weekend and this week has been such a total sea change from what it was like before.  Life’s changed completely and beautifully opened up again. 🙂 And I’m not only feeling relaxed […]

Tory Majority Day 71. September 1st. What does your health look like? Housing, decisions, change.

If you could draw your health, what would it look like?  Strange question, possibly, unintelligible, maybe. But think about it for a moment. What does it look like? Over the last week or so I’ve started to visualize, imagine my health as a separate being from me. She’s my Health-me. This has happened because in […]

Tory Majority Day 69: My Affordable Housing Manifesto For People On Housing Benefit In London

The emails are dropping into my inbox in a flurry of last minute electioneering from all Labour candidates for the leadership election and London mayor.  I can’t remember how or when this happened or who said it in the first place, but I do recall a phrase: “people vote with their pocket” becoming very popular in […]

Tory Majority Day 65: The London Flat Hunt On Housing Benefit – It’s All Gone Pete Tong

In the future I suspect I’ll look back on today fondly. There was a flat with my name on it, you see. The Tall Agent – I’ll name which agency has been so marvellous when my flat hunt is over – had worked really hard. He was thoughtful, considerate, nice to talk to on the […]

Tory Majority Day 63: Renting In London on Housing Benefit, Unrentable To Rentable – Have I Found Somewhere To Live?

If I write this down will I jinx it?  Yesterday morning I phoned one of the well known high street estate agents that has been so brilliant this week. I called them first thing because, as I left the viewing of the postage stamp sized studio flat on Thursday, they mentioned that they’d got a […]