Tory Majority Day 48: Packing and Pacing, Spoon Theory, Dodgy Knee and The Day Before The Welfare Cuts

Before I write this, I want to give a big thank you to everyone who reads my diary and has sent me kind, supportive and thoughtful words over the last week.  One of the things that I’ve found about the ME community is that everyone knows how it is better than ANY medical professional or […]

Tory Majority Day 47: Leaked Document About Tory Cuts – Housing Benefit – How More Stressful Can Life Get?

I’m feeling very stressed at the moment and this diary is going by the wayside. Kindly, I think this is what people call having not enough spoons for writing. S.T.R.E.S.S.E.D  O.U.T  That’s true, it is the case I don’t have a lot of spoons in my mental space in my scrambled, stressed out head and […]

Tory Majority Day 45: Low Standard Private Rental Housing, “My conscience won’t let me let a baby live there”

Things with my landlord came to a head on Thursday to Friday last week when I emailed him a letter about the condition of my flat, coupled with some photos. I’d been putting this off as any contact with him raises my anxiety level to 11 but on Thursday afternoon I thought: “It’s never going to […]

Tory Majority Day 41 Why Would Having MECFS Affect Your Emotional Brain?

I really like puzzles. I particularly like puzzles that are about the human mind, behavior and health. That’s one of the reasons why I studied Psychology.  Having ME has been exactly the same as it is for anyone having ME on an hour by hour basis. Filled with pain, sickness, exhaustion and the rest. However when […]

Tory Majority Day 40: My Disability Advocate, Unsafe Housing, Dealing With Stress and ME CFS and Social Services Referral

Julie, my new disability advocate  has created a u-turn in my thinking so much that when I didn’t hear from her since our assessment last week I started to wonder if she’d been a mirage or even she didn’t exist and was a new ME symptom!  But no. Her office computer had broken. Now it’s fixed […]