Diary Day 97: Clinical Depression And MECFS – Post 1

This is a follow up post from yesterday, which was about how I manage my sleep problems using a prescribed drug from my GP called Mirtazapine (MTZ.) MTZ is an anti-depressant and with the history of ME being mistaken for, or treated as a primary mental health condition, I wrote yesterday’s post knowing it is […]

Diary Day 91: In My New Home, Housing Benefit, Patient Group Direction Flu Jab, Telling Pharmacist What MECFS Is

….and hello December!  It’s more like the end of February down here at the moment, the sun is shining in the way it does when the season is changing from winter to Spring and you feel that warmth is coming. Maybe it’s also my good mood warming me up because I’m firmly ensconced in my […]

Tory Majority Day 84: Why I Don’t Pick Up The Phone – MECFS and Noise Sensitivity or Hyperacusis

Yesterday my dodgy ex-landlord accused me of not picking up the phone when he called.  The day before, The Telegraph had published an article about GET and CBT, the UK NHS treatments for CFSME. I was vocal over Twitter about the bad news the publication of this article meant for the ME community. Yesterday The Telegraph […]

Tory Majority Day 81: Finances, Specifically To Do With Low Income, Housing Benefit and Private Rented Housing

There are so many strands of thoughts that have been running around my mind for the last week or so and almost as many potential blog posts. This one will be about finances. It won’t be the last, partly because it’s such a BIG subject that it won’t all get down in one post. Anyone […]

Tory Majority Day 57: The Stress Tornado Passing, Payback, Sleep, Light Appears

How long has life felt like this? Since June, when I started the ball rolling by asking my dodgy landlord to move. It’s been weeks at a much, far higher level of activity that I’ve experienced since the long-ago, beginning months of holding down a job with a new diagnosis of MECFS. The last weeks […]

Tory Majority Day 56: Eviction For Repairs, Lettings Agents Reaction To The Housing Benefit Question

Yesterday I wrote about how a series of circumstances had left me with one option: to contact my dodgy landlord and tell him I wasn’t moving after all. Good mental health and self care I did hang  over my email and phone all day on Tuesday waiting for an answer, yes, but I didn’t get […]

Tory Majority Day 55: Renting On Housing Benefit London. House Move, Not Going Ahead.

I should have known. Last week I was on the phone to my current (dodgy) landlord. It was the first time he’d been in touch with me directly since the decision was made to press the big red button and ask them to re-house me. While we were talking I had a sense of there […]

Tory Majority Day 54: Crash, Payback, Reason For The Gap In Writing, Thanks Tommy Walsh

I should have seen it coming – a crash, that is. Rather unsurprisingly after all the events of the last few weeks I had a crash which started last Thursday afternoon. For anyone reading who isn’t a spoonie or doesn’t know what a crash is, it’s a term that is used by people who have […]

Tory Majority Day 53: Rest, Cancer, Being A Spoonie, Pathographical Writing, Real Life Situations and MECFS

I went to and fro about what to write about yesterday, partly because I don’t write about everything in this diary. It’s public and anyone can read it and so there is judicious editing about what goes onto this screen. The judicious editing happens partly because for anyone with ME, taking on board the act of […]

Tory Majority Day 52: Slings and Arrows….

It’s been a few days since I last posted. That’s partly because my attention has been elsewhere. Packing up and moving for a spoonie means that there’s hardly any time left to think about adding a blog post into the mix. There just isn’t enough energy left after battling with bulging boxes. I’ve said it […]