Diary Day 101: An Example Of How MECFS Really is. Yes Really.

On Sunday afternoon, my family were visiting. It was the first time they’d seen me since Xmas, which, for a group of relatives¬†who all live in London, and all regularly visit my silver surfer Dad, is an example of how much planning it takes for me to host a social event at my place. Honestly, […]

Diary Day 100: Reading Postive Press About The MECFS PACE Trial Upsets Me Again

I’ve been focussing my attention on other things recently – well, focussing what attention I have towards other things recently – I should say. Occasionally though, something has popped up in my timeline through stories that are circulating in the news, or via the ME charities and they pull my attention back towards CFSME and […]

Diary Day 99: An Aside About The Housing Benefit Missing Xmas Payment Cock Up and Universal Credit

On New Years Eve, I opened up my bank account and read the balance. My rent was due on the 3rd January 2016 and, as this was the last day of the month, my new Housing Benefit payment of ¬£909.00 should have been in my account since my recent house move. Housing Benefit is paid […]