Tory Majority Day 79: CFSME and Applying For DLA and PIP – Seeking Advice

2 years ago I applied for Disability Living Allowance. I had help – my then disability rights and welfare support worker, the “First Julie”, was exemplary in taking me through the forms, guiding me to what evidence to collate, how to fill it out and what do to to appeal. She lost her job before […]

Tory Majority Day 78: Why I Did Graded Exercise Therapy For MECFS And What It Was Like Plus CFSME and Diabetes

At the bottom of yesterday’s post, a reader posted a comment about why I’d written:  “None of them have helped my symptoms, except Graded Exercise Therapy. GET confirmed to me that I can do a bit of exercise and described exactly how much that is before I decline. It was useful in that way.” GET can […]

Tory Majority Day 77: What Works – My Rule Of Thumb For Getting MECFS Symptoms Reigned In

I’m suffering from an increase in MECFS symptoms at the moment but if you follow my diary you’ll have read how it feels pretty much every time I post. There’s never a day that goes past where the unwelcome guest isn’t in my life, so what do I do that makes it possible to manage the symptoms […]

Tory Majority Day 76: The Realisation Of The Limitations Of Having MECFS

It’s become obvious again: that this condition, this illness, this disability steals your life, your health and your choices. I’ve been having obvious spikes in symptoms over the last month. It’s not that I was well before the last month, honestly I wasn’t, but today I realised that before pressing the big red button to […]

Tory Majority Day 75: What The Council Said About Getting Private Landlord To Evict Me So They Could Help Me With Housing

In the array of things that I’ve heard from the (now) 25 or so lettings agencies about why landlords won’t take someone on Housing Benefit in my area of London, the one that stuck in my mind above all others was this: “The Council will tell tenants to remain in properties if they want their […]

Tory Majority Day 74: I Feel Like 7 Sacks Of Sh*te, Post Exertional Malaise and MECFS

I.feel.So.Ill. I’ve got that sea-sick feeling in my head and stomach. My balance is off, as if an earthquake is happening and I can’t get my feet firmly on the rolling ground. My head is pounding and throbbing in time with the rolling ground. I started sneezing this morning. I can feel tickling in my throat, […]

Tory Majority Day 73: Voting in Labour Leadership, Decorating, Post Exertional Malaise, Flathunt Stalled.

I almost forgot to vote in the Labour Leadership, which is incredible as the volume of emails from Tessa, Sadiq, Jeremy, Ken – he supported Jeremy, David, Diane, erm all the others and then them all over again, and again, and again AND again was an avalanche. It certainly isn’t the case that I had […]

Tory Majority Day 72: It Would Have Been Happy 80th Birthday, Mum. Thank you For All You Did To Help Me.

Today would have been  my mother’s 80th birthday. She died two years ago having battled cancer for just over 5 years. She was diagnosed with cancer and then went through the first two years of surgery, chemotherapy and radiotherapy before I realised that something was very wrong with me, something that was eventually diagnosed as […]

Tory Majority Day 71. September 1st. What does your health look like? Housing, decisions, change.

If you could draw your health, what would it look like?  Strange question, possibly, unintelligible, maybe. But think about it for a moment. What does it look like? Over the last week or so I’ve started to visualize, imagine my health as a separate being from me. She’s my Health-me. This has happened because in […]