Tory Majority Day 57: The Stress Tornado Passing, Payback, Sleep, Light Appears

How long has life felt like this? Since June, when I started the ball rolling by asking my dodgy landlord to move. It’s been weeks at a much, far higher level of activity that I’ve experienced since the long-ago, beginning months of holding down a job with a new diagnosis of MECFS. The last weeks […]

Tory Majority Day 56: Eviction For Repairs, Lettings Agents Reaction To The Housing Benefit Question

Yesterday I wrote about how a series of circumstances had left me with one option: to contact my dodgy landlord and tell him I wasn’t moving after all. Good mental health and self care I did hang  over my email and phone all day on Tuesday waiting for an answer, yes, but I didn’t get […]

Tory Majority Day 55: Renting On Housing Benefit London. House Move, Not Going Ahead.

I should have known. Last week I was on the phone to my current (dodgy) landlord. It was the first time he’d been in touch with me directly since the decision was made to press the big red button and ask them to re-house me. While we were talking I had a sense of there […]

Tory Majority Day 54: Crash, Payback, Reason For The Gap In Writing, Thanks Tommy Walsh

I should have seen it coming – a crash, that is. Rather unsurprisingly after all the events of the last few weeks I had a crash which started last Thursday afternoon. For anyone reading who isn’t a spoonie or doesn’t know what a crash is, it’s a term that is used by people who have […]

Tory Majority Day 53: Rest, Cancer, Being A Spoonie, Pathographical Writing, Real Life Situations and MECFS

I went to and fro about what to write about yesterday, partly because I don’t write about everything in this diary. It’s public and anyone can read it and so there is judicious editing about what goes onto this screen. The judicious editing happens partly because for anyone with ME, taking on board the act of […]

Tory Majority Day 52: Slings and Arrows….

It’s been a few days since I last posted. That’s partly because my attention has been elsewhere. Packing up and moving for a spoonie means that there’s hardly any time left to think about adding a blog post into the mix. There just isn’t enough energy left after battling with bulging boxes. I’ve said it […]

Tory Majority Day 51: For Anyone Who Wants To Know What MECFS Is

Even when you have an illness and know it’s intricacies, it’s challenges, how it feels, how it affects your life, how it steals you from yourself and your loved ones, how much it has destroyed you and how it rips you from your life, reminding yourself how it can be for other people is important. […]

Tory Majority Day 50: Osbourne’s Emergency Budget – Reflect and Regroup The Protest Continues

George Osbourne’s emergency budget was long feared by myself and many, many people who are reliant on welfare benefits to survive a long term illness or disability.  I cannot overstate the impact mentally and emotionally on me during the wait to find out if my life and health will get significantly worse under the new Tory […]

Tory Majority Day 49: The Tipping Point For My MECFS, Antibiotic Prescriptions Perhaps?

[I’d like to precede this post by saying that I’m not a medical doctor. Even if I was, what I am about to say is termed as ‘opinion’. In a nutshell that means I’m allowed to write about whatever I want to write about, because it’s my opinion only. Please don’t rely on what I’m […]

Tory Majority Day 48: Packing and Pacing, Spoon Theory, Dodgy Knee and The Day Before The Welfare Cuts

Before I write this, I want to give a big thank you to everyone who reads my diary and has sent me kind, supportive and thoughtful words over the last week.  One of the things that I’ve found about the ME community is that everyone knows how it is better than ANY medical professional or […]