Rest / noun / [rest]
An essential component to coping with CFSME symptoms.
The opposite of rest to someone with CFSME is “activity.”
People with CFS or ME require regular periods of total and complete rest in order to minimize and address their CFS or ME symptoms.
In the NHS CFSME clinics, rest is clearly proscribed as ‘not sleep’. Sleeping isn’t rest. Rest is different. Rest breaks can include meditation and guided visualisation, for instance.
The technique of rest requires the mind and body to be completely unstimulated. The environment is important to good quality rest.
Watching TV is not rest, listening to music is not rest, lying on your bed in the dark texting your mates every now and again isn’t rest, shutting your eyes when your family is noisy around you isn’t rest, being in an an environment that can interrupt you with noise or demands or light isn’t restful and taking 5 to make a cuppa while you are in the middle of a busy day in the office at work isn’t rest.
Going on holiday to get away from it all isn’t rest either.
What is rest
Rest is both taught and learned. It is a behavioral, non-pharmaceutical method of treating CFSME.
Rest is an art form as well as a doing word. Many people with CFSME say that regular rest breaks are essential to help them cope with the symptoms that occur because of the bodily and psychological responses to an over-stimulating environment and the inherent symptoms that ME and CFS brings.
“Over stimulation” for some people with CFS ME can be as simple as taking one phone call in a day.
Rest is not a cure. Rest is a way some people cope with having CFS ME.
Today I need to rest.
I have learned that on days like I have to totally rest to quieten down to a stop.
© Lindy 2015