Tory Majority Day 45: Low Standard Private Rental Housing, “My conscience won’t let me let a baby live there”

Things with my landlord came to a head on Thursday to Friday last week when I emailed him a letter about the condition of my flat, coupled with some photos. I’d been putting this off as any contact with him raises my anxiety level to 11 but on Thursday afternoon I thought: “It’s never going to […]

Tory Majority Day 44: The Greater London Council Home and Housing Association Deficit

Julie, the disability rights officer who is helping me with my housing situation explained something today that was a light bulb moment. She explained why she’d said: “It’s not worth appealing the decision. It won’t make a bit of difference.” She was advising me not to appeal against a decision to keep me in Band D by […]

Tory Majority Day 43: MECFS and High Hemoglobin Can Anyone Explain?

The crook of my left arm is filled with holes from the blood tests I’ve had done in the last week.  My weeks used to be punctuated by weekends and working weeks, weekend, week, weekend, week. Since last September they’ve been punctuated with diets and blood tests. Diet, blood test. Diet, blood test. I saw […]

Tory Majority Day 42: Permitted Work Claiming ESA or DWP Tripwire?

It was father’s day this Sunday and I spent some time with silver surfer Dad and my sister, HS.  The subject of Permitted Work came up. Permitted Work is a scheme run by the Department for Work and Pensions for people who are claiming Employment and Support Allowance, the UK’s sickness benefit payable to people who […]

Tory Majority Day 41 Why Would Having MECFS Affect Your Emotional Brain?

I really like puzzles. I particularly like puzzles that are about the human mind, behavior and health. That’s one of the reasons why I studied Psychology.  Having ME has been exactly the same as it is for anyone having ME on an hour by hour basis. Filled with pain, sickness, exhaustion and the rest. However when […]

Tory Majority Day 40: My Disability Advocate, Unsafe Housing, Dealing With Stress and ME CFS and Social Services Referral

Julie, my new disability advocate  has created a u-turn in my thinking so much that when I didn’t hear from her since our assessment last week I started to wonder if she’d been a mirage or even she didn’t exist and was a new ME symptom!  But no. Her office computer had broken. Now it’s fixed […]

Tory Majority Day 39: Type 2 Diabetes and MECFS, Graded Exercise Therapy, On Your Bike?

In September last year a set of routine blood tests carried out by my GP told me something that I literally did not see coming: I was at risk of developing Type 2 Diabetes.  Before ME diagnosis – A OK – blood glucose normal. 2 years in to having ME – this! The blood tests were […]

Tory Majority Day 38: MECFS Brain Fog, Cooking On Benefits and Energy Friendly Vegetable Soup

It’s been an energy sapping week with the potential house move and once again, I’m in the last few days of an ESA fortnight as well. I have a grand total of £8.43 in my purse and no money left in my bank account. This unenviable combo of tiredness, distraction and very little money sent me to […]

Tory Majority Day 37: Preparation For Moving Home, How To With ME CFS

My father said: “Isn’t this a bit…premature,” when he heard that I was getting my home and my possessions ready for the move. “Maybe, Dad, “I replied, “but while I’ve got the energy to do it, I have to get the flat straight. Once I start proceeding with breaking the tenancy agreement and all that […]

Tory Majority Day 36: What Julie The Disability Rights Worker Asked In My Housing Assessment

It appears that some of you who read my diary are particularly interested in the situation with my housing.  Since my at-home assessment with Julie, my new disability rights worker, on Tuesday this week I haven’t written more about it. This was intentional because I was processing a lot of what was said and I […]